At SHARE UK your privacy is paramount. Your details will never be passed on or shared with anyone else. Your details will never be used for marketing purposes and we will not contact you without your consent.
Any data you contribute will be fully anonymised so that even our researchers cannot identify you. This data is stored on a secure encrypted server which is only accessible to members of our research team.
Our data collection systems are based on proven technologies and robust anonymisation and encryption processes ensuring maximum security. All operating procedures for data acquisition, management and utilisation are consistent and auditable further ensuring robustness and security.
If you have any concerns or questions about your privacy or data contact us
Contact for future research
You have the option to allow us to contact you to take part in future research studies. You don’t have to check yes to this, and we won’t contact you without your consent. We will never write to you at your home address or contact you by telephone unless you have given us express consent to do so.
To make sure you remain anonymous your name and contact details are stored separately from any other information you give.
If you do want to be contacted for further research we will only contact you regarding research being undertaken by our team that we feel you may be interested in. We will never pass your details on to anyone else. You can choose to not to be contacted again at any time here or by contacting us. In this case your personal details will be deleted from our database.
Linkage with routinely collected data
You have the option to consent to the data you contribute online to be linked with routinely collected healthcare data. You don’t have to check yes to this if you don’t want to, and we are not able to link your data without your consent.
In order to make the link with routinely collected data we need a few extra details from you (address and date of birth). These are used only for the purpose of making the link with your anonymised data. Any personal details will only be used for this purpose. We will never contact you at your home address. These details are separated from your healthcare data and any data you give us online. This means that even our researchers are not able to identify you.
For more information on data security of linked healthcare data visit http://www.saildatabank.com/